Tampa Community Unites For
8th Annual FARA Energy Ball
Friedreich’s Ataxia (FA) is a debilitating multi-system disease and the most common cause of inherited ataxia; 1 in 100 people are carriers of the FA Gene. What begins as difficulty with balance and coordination, progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to live active and independent lives.
In the pursuit of treatments and a cure for FA, the Tampa community will unite with scientists and patient families on September 15-17 at the Friedreich’s Ataxia Research Alliance (FARA), eighth annual Scientific Symposium and Energy Ball Gala. At the symposium, guests will receive updates on progress on FA research from the bench to the bedside.
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The symposium can be attended in person with an RSVP at www.usf.edu/ua/RSVP or streamed online at www.ustream.tv/channel/curefa. Wendy Ryan, ABC Action News Anchor, will emcee the event and Steve Griggs, Tampa Bay Lightning CEO, will chair the event with his wife Janell. There will be a live auction featuring exclusive getaways, cocktails and dinner, and a live performance by Blonde Ambition. Funds from the event benefit FARA and the USF Ataxia Research Center.
Last year, FARA funded over $4.5 million in drug development and clinical research worldwide.
Visit curefa.org/energyball to learn more.
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